The nine months that pass as a baby develops in a mother’s womb are a thrilling period for any expecting parents.
There is no greater joy than hearing your newborn baby cry for the first time after it has been delivered.However, the birth of a child might have unexpected consequences for certain families.
We need your prayers, then. Michelle, a patient at Lurie Children’s Hospital, has been admitted to the paediatric intensive care unit due to two separate bowel illnesses. There she is…
Dated January 18, 2020 and posted by Mary Kish Mary and Brad Kish of Illinois, USA, were eager to meet their daughter in the late 1990s.
Mary’s pregnancy and delivery were both smooth and uneventful. During the labour and birth of their daughter Michelle, there were no red flags that anything was amiss.
However, the moment she opened her eyes, the physicians knew something was wrong. Before checking the medical archives and a geneticist at a different institution, they had no idea what it was.
Monday, February 3, 2020 Mary Kish Michelle’s face was chubby and innocent-looking. Not only was her nose like a little beak, but she was losing her hair as well.
She was diagnosed with Hallermann-Streiff syndrome, an extremely uncommon genetic disorder with just 250 documented instances globally.
Michelle was born at Children’s Memorial Hospital, and no one there had ever seen anything like it.My spirits were crushed when the doctor announced a diagnosis of Hallermann-Streiff syndrome.
When Michelle’s mother found out her daughter had a rare genetic disease, she was terrified. “How are we going to care for our child who was one in five million?” she asked Daily Mail.
Michelle experiences 26 of the disease’s 28 recognised symptoms. Only one in every five million individuals suffer from this condition, yet it has serious consequences.
Monday, February 3, 2020 Mary Kish Michelle has Hallermann-Streiff syndrome and a kind of dwarfism; as a result, she is only slightly taller than her sister despite their two-year age gap.
Because of her medical condition, Michelle requires a great deal of support, including the use of a variety of assistive devices.
Michelle and her family have spent a great deal of time in the hospital because of the condition. She is 25 years old, although people often assume she is much younger due of her appearance.
Michelle, now a twenty-year-old lady, has an IQ of a poodle and more joy in her life than she ever has known. “She is one of the happiest 20-year-olds I know,” Mary said to the Daily Mail in 2018. She elaborated:
She spreads happiness and makes people’s life brighter. She accepts that she is unique and doesn’t let that fact discourage her.
Michelle is a remarkable and one-of-a-kind young lady, despite having to struggle mightily against the odds.
She hopes, among other things, to have a boyfriend like her older sister did. Almost everyone is taller than her, so she doesn’t mind if he is, but she did wish that he would have long hair.
She hopes to one day join the medical profession.If you want to learn more about Michelle, I highly recommend the video I’ve included below.