Patients with albinism have a distinctive and easily recognisable appearance because of the rare hereditary disorder’s lack of pigmentation in the skin, eyes, and hair.
The fact that a Kazakh couple overcame the odds twice, by bringing into their family two albino children, despite having a 12-year age gap, is truly amazing. Albino children are rarely born, so their story is remarkable.
Let me introduce you to Asel and Kamila, two diametrically opposed twins who have become well-known as sought-after models in addition to accepting their condition. The oldest sibling, Asel, has reached the age of 14, demonstrating the endurance and importance of the journey.
Mother of Asel and Kamila Aiman Sarkitova reflected on her experience and expressed her shock at learning that Asel had albinism at birth. She looks back fondly on a time when our understanding of genetics was less developed.
The field of genetics was still in its infancy for us at the time of Aiman’s first child’s birth. The on-site doctors were surprised by how unusual the scene that was unfolding in front of them was. It is simply astounding to see how far we have come since then, when we were barely scratching the surface. ”.
The family was surprised by Kamila’s arrival, which only served to highlight their remarkable journey.
The two siblings join a modeling team because, when positioned side by side, they present an appealing and aesthetically distinctive presence.
Asel started modeling when she was ten years old, but her fame soared after the birth of her sister, who is now two. Over 33,000 Instagram users follow them, which is a sizeable following.
Albinism has undoubtedly contributed to their success, but it’s important to recognize that they’ve faced challenges along the way. One of the most frequent issues associated with this illness is photosensitivity.
Asel stated, “If I go outside in the afternoon, I always wear sunscreen, protective clothing that shields my skin, headgear, or even carry an umbrella.”.
Thankfully, Asel and Kamila can lean on each other no matter what life throws at them. Due to their rarity, albinos often feel isolated, but these two sisters are fortunate to have a cousin who recognizes their unique circumstance.
Their relationship is strengthened by this connection, which goes beyond simple familial ties to provide them with a level of understanding and companionship. Their professional success as models should ideally also help to raise awareness of albinism and bring attention to how stunning those who have the condition are.
Asel said, “Many people don’t know what albinos are really like. Asel’s remark exemplifies the pervasive ignorance of albinism and its effects.
But Asel and Kamila are actively working to dispel myths and inform people about their illness through their modeling endeavors and elevated visibility.
Their story serves as both an inspiration and a reminder that there are no restrictions on beauty and that albinism may actually be a special and amazing trait.