Millie Smith and her partner, Lewis Cann were filled with excitement when they learned they were expecting a baby. With twins running in Millie’s family, she had a strong feeling that her pregnancy might be a little different—and she was right. An early scan confirmed she was carrying twins, bringing both joy and concern. Doctors gently explained that while one baby appeared to be developing well, the other was facing serious medical challenges. From the very beginning, Millie and Lewis prepared themselves for a journey that would include both hope and heartbreak, determined to cherish every moment they were given as parents.
When Millie went into early labor at 30 weeks, the couple welcomed two daughters. One of them was diagnosed with a rare, life-limiting condition that meant she would not be able to survive long after birth. Knowing this, Millie and Lewis focused on giving their baby as much love and dignity as possible in the time they had. They named her Skye, a name chosen with deep meaning. For Millie, it represented a place of peace and remembrance—a way to feel close to her daughter whenever she looked up at the sky. Skye lived for a short time, but those hours were filled with warmth, gentle cuddles, and an overwhelming sense of love that her parents say they will carry forever.
After saying goodbye to Skye, Millie received compassionate support from hospital staff, including a dedicated space where families can spend quiet moments with their baby. However, as days turned into weeks, she noticed something that was unexpectedly painful: people stopped acknowledging her loss. While her surviving daughter, Callie, continued receiving care, other parents and visitors were unaware that Millie had once been caring for twins. Innocent comments—meant kindly—sometimes caused deep emotional pain. Millie realized that a small, visible sign could help prevent these moments and gently let others know that a family had experienced loss, even while continuing to care for another child.
From that realization, an idea was born. Millie created a simple purple butterfly symbol to place on incubators, representing babies who are remembered and deeply loved. Butterflies symbolized those who had “flown away,” while purple was chosen as a universal color. What began as one mother’s thoughtful idea grew into the Skye High Foundation, which now helps hospitals around the world adopt the purple butterfly initiative. The foundation also offers keepsakes and resources to support families. Today, Millie continues to honor Skye’s memory through awareness and compassion, while watching Callie grow. Her story shows how small acts of understanding can make a meaningful difference for families navigating both love and loss.